Posts in category: Fundraising Impact

In the heart of Southwest Virginia, a remarkable story of progress, support, and community unfolds every day. The Multiple Sclerosis Alliance of Virginia (MSAV), situated within the Roanoke Area MS Center (RAMS) in Salem, stands as a beacon of hope for those living with multiple sclerosis (MS) in the region. The invaluable multiple sclerosis support provided by the MS Alliance of Virginia has gained strength from the contributions and efforts from you, our Bike the US for MS community, playing a crucial role in amplifying our impact in the region.

Suzanne O’Connell, the president and founder of MSAV, recently encapsulated the essence of this collaboration. She states “there is no group of people or organization that has done more to financially support and fuel our project, and support the mission of the Multiple Sclerosis Alliance of Virginia, than Bike the US for MS.”

MS Support in Southwest Virginia: A Critical Focus

Tackling MS in Southwest Virginia, MSAV has developed targeted programs to address the unique needs of this community. The alliance operates on a foundational principle: people living with MS helping each other. This isn’t just a tagline; it’s the ethos driving every action, every program. As a 100% volunteer-driven organization, MSAV ensures every penny donated directly benefits their life-enhancing services.

Respite and Renewal

The Respite Weekend, a key initiative by MSAV, underscores the challenges of living with multiple sclerosis. For many individuals and their caregivers, coping with MS is a relentless task. The Respite Weekend, a highlight in 2023, offered much-needed relief, a chance for rejuvenation and connection. These moments aren’t just breaks; they’re lifelines for families.

I’m not able to take regular vacations and having the Brian Mason respite camp to look forward to each year is super exciting! In a beautiful environment I have a chance to rest as much as I need, hang out with my MS family and have exciting & educational activities available.

Catherine Harding – MSAV Member

Essential Resources for Independence

Understanding the immediate needs of those with MS, especially in emergencies, MSAV’s ‘loaner closet’ stands as a fantastic initiative, showcasing their dedication to providing essential support in times of need. Stocked with wheelchairs, scooters, and other vital medical equipment, it’s an invaluable resource for members to maintain independence at home during often lengthy waits for insurance-covered equipment.

A Hub of Empathy and Understanding

At the heart of their operations is the RAMS center, the first-ever MS center in Southwest Virginia. It’s more than a physical space. It’s a focal point for care and knowledge where volunteers, deeply familiar with the MS journey, offer support and guidance.

MSAV: A Welcoming Source of Care and Assistance

MSAV’s emphasis on educational, recreational, and socializing activities is integral to its mission. They’ve brought speakers from around the globe to Southwest Virginia, offering insights and knowledge crucial to the local MS community.

Aiding the Journey: Bike the US for MS’s Role in Supporting MSAV’s Mission

Bike the US for MS has been instrumental in keeping MSAV’s mission alive. Without the funds you raised through cycling events and community support, Suzanne believe MSAV might not have survived beyond its first year. Today, the MS Alliance of Virginia stands as a powerful example of what can be achieved with compassion, dedication, and collective effort.

Suzanne O’Connell aptly summarizes, “We have saved lives, changed lives, and helped more families than you could imagine.” This captures the essence of what Bike the US for MS aims to support—a world where every individual impacted by MS in the US has access to the care and support they need to lead fulfilling lives.

We invite you to visit the MSAV website, a site maintained entirely by volunteers. It’s an opportunity to understanding the depth of their work in multiple sclerosis support.

Bike the US for MS is more than just a bike ride. It’s a movement fuelling organizations like MSAV, turning the wheels of positivity and resilience for countless lives touched by MS. This June, our TransAmerica team will have the opportunity to meet the incredible individuals at MSAV as they cycle across America. We invite everyone in the region to join us in this special meeting. You’ll get to connect with both the MSAV and our TransAm cyclists. You won’t want to miss it!

In 2023, Bike the US for MS has shown that cycling for a cause can create waves of positive change. Our collective pedaling isn’t just about the journey; it’s a driving force in supporting and uplifting those living with multiple sclerosis (MS). This article highlights the achievements of our cyclists in MS fundraising and the heartwarming impact their hard earned donations had on MS communities across the US.

The Swedish MS Center in Seattle – Adventure and Empowerment

The Swedish Multiple Sclerosis Center in Seattle, a part of the Swedish Neuroscience Institute, stands as a pillar of excellence and innovation in the treatment and care of MS. Renowned for its comprehensive approach, the center not only focuses on the extensive physical and cognitive symptoms of MS, but also addresses the emotional, psychological and social aspects of living with this complex disease. Bike the US for MS has been fortunate to be able to support the center for many years and we can’t wait to be back in Seattle at the end of the Olympic Peninsula and ahead of the Pacific Coast ride in 2024.

Skydiving Dreams Come True for MS Patients

John Mistur, living with MS for over 15 years, had his dream fulfilled through Swedish’s MS Adventure Program, supported by our MS fundraisers. Despite his quadriplegia, John experienced the thrill of skydiving, a testament to the program’s commitment to helping patients “fly again.” Watch John’s skydiving experience and feel the spirit of freedom and adventure that you helped enable.

The Magic of the MS Adventure Program

Under Dr. James Bowen’s leadership, the Swedish MS Center’s Adventure Program has become a beacon of hope. It offers an array of activities – from snowshoeing to kayaking – catering to various abilities. Simon Gale, the program guide, ensures that these experiences are not just about physical activity, but about reconnecting with passions and not being defined by a diagnosis. Your support has been crucial in facilitating these life-enriching experiences.

Fairview MS Achievement Center in Minneapolis – Community Engagement and Creative Expression

The Fairview MS Achievement Center in Minneapolis, a specialized therapeutic day program and outpatient rehabilitation clinic, has been a cherished stop for our Northern Tier teams for many years, with plans to return on the 2024 North Lakes Bike Route. This center in St. Paul, MN, is dedicated to enhancing the body, mind, and spirit of individuals living with multiple sclerosis through its thoughtfully designed services. Emphasizing a holistic approach, it provides a supportive environment where people with MS can access various therapies and programs aimed at improving their overall well-being and quality of life.

Trips in the Community

At the Fairview Achievement Center, isolation turns into community engagement, thanks to your contributions. Participants have enjoyed numerous trips, including volunteering at Feed My Starving Children and visits to the Minnesota History Museum and Como Zoo. These outings are more than just trips; they’re gateways to social interaction, learning and joy for individuals who often face isolation due to their MS.

Art Therapy’s Healing Touch

The center’s art therapy program, in collaboration with the Northern Clay Center, has become a source of creativity and healing. Your support has enabled participants to explore their artistic talents, providing a therapeutic outlet to combat the symptoms of MS. Each art project is a step towards managing stress, depression and fatigue associated with MS.

Nourishing Bodies and Minds

Another aspect of the center’s support has been in providing meal support. Nutritious meals are crucial for the well-being of individuals with MS, and your contributions have ensured that participants receive the nourishment they need during their time at the center.

MS Alliance of Virginia in the Roanoke Valley – Fostering Connections and Awareness

The Multiple Sclerosis Alliance of Virginia (MSAV), nestled in the Roanoke Area MS Center (RAMS) in Salem, VA, is a dynamic and evolving organization dedicated to aiding those living with MS, including veterans. Founded by Suzanne Oconnell, a passionate advocate and leader of the Roanoke Valley MS Support Group, MSAV has grown significantly under her guidance. This entirely volunteer-led organization offers a range of programs, from support groups to educational and empowering events, all designed to enhance the lives of those affected by MS and their families. We can’t wait to see everyone at the MSAV again as we bike across America on the TransAmerica route in 2024.

A Member’s Gratitude: Beyond Medical Support

‘To Suzanne, I remain blessed and thankful by your working tirelessly to ensure that our MS community, not only learned about the medical aspect of our disease, but also enjoyed opportunities to be social and connected to the world outside of our feelings of isolation and not believing that public acceptance/tolerance is possible!

Thank you!’

A heartfelt letter from a member of the MS Alliance of Virginia encapsulates the essence of Suzanne and her team’s impact. Your MS fundraising efforts have helped members feel less isolated and more accepted and connected to the world, fostering a healthier personal identity.

Empowering the Local MS Community

The Bristol Alliance thrives under Suzanne’s leadership, offering support and activities that reinforce a positive self-identity for MS members. Your support has been pivotal in sustaining these empowering initiatives.

Diverse Programs and Community Outreach

The MSAV’s diverse programs, such as Cinderella’s Closet and the MS Patient Conference, underscore their commitment to a better-informed community. Your support has helped heighten awareness and understanding of MS, further integrating individuals with MS into the broader community fabric in Virginia.

Thank You

The stories and programs we’ve highlighted are just a glimpse of the MS fundraising impact you and Bike the US for MS has had this year. In addition, the funds raised have also been crucial for our service projects across America, provided direct assistance to those living with MS, and raising awareness for MS while out on the road.

Through cycling, we’re not just traversing landscapes; we’re bridging gaps, fostering hope, and supporting those living with MS in tangible, life-changing ways. Join us as we continue this journey of support and empowerment.

Join us! Cycle for a cause on an MS fundraiser in 2024.

Additional Resources

Discover more about the organizations and how you can be a part of this incredible journey:

– Swedish MS Center

– Fairview Achievement Center

– MS Alliance of Virginia